All of my fellow D-parents probably already know about this but some new D-parents and non- D folk may find this to be new info. In the Diabetic community, on twitter and facebook, when a child dies of a complication of diabetes a picture of a blue candle is put up. This week we had a 15yr. old girl pass away in the night due to a low.
I cannot even imagine what her parents are going through right now. We work so hard to keep our kids safe and in one moment it can be taken away. This is true with everyone I know, but diabetes just magnifies everything. I hate diabetes so much for that. Sleep becomes a luxury. There is almost a sense of guilt when you get it, because you know some mom is out there suffering from a lack of it due to a low blood sugar or a high one. Both lows and highs can be fatal. I wish I could sugarcoat that fact but I can’t. I talk to Cooper all the time about these crappy realities because I am a big believer in knowledge is power. I want him to be as accountable as I am and not monkey around with the disease. Sneaking food or playing around with insulin doses are taboo around here. If he wants chips, he has the chips. He just meters in everything. I have had to work REALLY hard to bite my tongue and let him eat things he craves because it is more important to me that he learns to account for every bite put in his mouth, than shaming him into sneaking food. I want to have an open relationship with him and sometimes it is just plain hard. Parenting is hard anyway and parenting a diabetic kid is really hard. I hope I never have to go through what that girl’s family is going through. I pray every day for a cure and for peace to all my fellow D-families.